10 Comments
User's avatar
Djlondon80's avatar

It's quite clear, you have fluctuations in your need for care and have a great deal of the week where you are quite active, swimming winning races etc.

The council are saying you accumulate the money when do you do need the care and use it when you do.

The hotel they have offered you is a first step, take it and stop putting barriers in place. It has a lift you can use your wheelchair ( when needed)

You seem intent on getting a larger sum for your "friend" just take the hotel I'm sure your friends are exhausted by your constant insisting putting barriers to your own wellbeing.

Expand full comment
Paul Atherton (FRSA)'s avatar

Hey Bot,

Welcome back, always good to highlight how stupid amalgamated online thinking is.

If you were a human, the questions you would have asked of course would have been these:

Why did the Council not take the £25,000 a year saving they were offered?

Why would the council conclude the disability issue was with a Wheelchair - especially as it wasn't - and what was the real issue?

Why is their focus not on getting you your National Insurance claim paid properly - as nothing can happen without that. You can't buy food, pay for electricity, gas, wifi, council tax, etc. which you'd need to take on a tenancy - and why therefore, is it not their highest priority? Or alternatively why don't they get the DWP just to pay you back the £130,000 worth of premiums you paid into your N.I. during your working life, if they are not going to pay out on the claim the funds were provied for - which in todays money would be more than a £1/4 Million? That would comfortably sort your problems.

You've been bedridden & unable to talk for over a year at a time - that could happen again tomorrow - where is this accumulation of care coming from they talk about?

If you're functioning a 1/3 of a day at best - how could 2 hours a day be sufficient for someone to cook, clean, shop, wash and dress you, do laundry etc in the morning and the evening and deal with the Council & DWP admin that's needed? This one thread of emails alone, asking one simple question, would have taken 4 hours in a week to compose?

20 minutes of swimming could result in a 3 day crash or longer, as the NHS weblink explained. But it shouldn't stop you from doing it should it?

You function at best, 7 hours in a 24 hour period, that's less than a 1/3 of a day at your very best. At your worst, it's stated you need 24 hour care. So unclear where they are drawing their conclusions from?

But above all, if you were human you'd ask the most obvious question of all.

Why aren't they helping?

Best

Paul Atherton FRSA

Expand full comment
Djlondon80's avatar

HI Paul

Ok let’s see, of course you call me a bot how predictably childish of you! The truth is someone needs to tell you the hard truth as clearly those close to you aren’t able to, its not nice but it’s the truth.

£25K a year – you need to stop focusing on this, you wont fix their systems to your perceived logically way of working you need to work with them or they will destroy you like they currently are.

Wheelchair – well because that’s the reason you previously gave them why you couldn’t take accommodation, I feel like I know more about your life than you do, or you choice to ignore.

20Mins Swimming ‘could’ result in a 3 day crash – well if that were true for you why would you put yourself through it? We both know its not true don’t we.

National insurance – I tried not to laugh, you truly believe this don’t you?

Either way good news, the hotel you have been offered you wont have to pay gas, electricity etc and as your pressing issue is homelessness I suggest you take it, take your care money offered and work on the system from within.

And finally, Why aren’t they helping? – well the truth is they are, just not how you specifically want them to help 100% to your liking.

All the best, I truly wish you well and to sort your life out.

DJ

Expand full comment
Paul Atherton (FRSA)'s avatar

Hi DJ Bot,

I've always called you a bot - the fact that you don't recall that in our other engagements makes my case. But intelligent human beings just don't do what you are trying to do.

They engage, ask questions, support one another and don't cherry pick points.

And what they empatically don't do is put forward nonsensical opinion as fact - that is most definitely bot behaviour.

For instancne you've totally ignored facts. Not once, was my Wheelchair mentioned when it came to disability - all that was said was the venue wasn't suitable for my disability. Any ME/CFS sufferer will tell you the impact of exercise (which if you were real, you'd probably know some) on their condition (It was why NICE dropped GET - you'll have to look that up if you don't know what I'm referring to). If you don't understand the difference between living and surviving (again a human trait that boolean logic won't comprehend) you won't graps the importance of doing something you love at a cost, rather than avoiding it to save suffering but not be alive.

Equally, I'm sorry you don't understand the social construct developed by Beveridge & Churchill in the UK (But now your have those names and know the country you're engaging in - perhaps your priogramming will learn about "Protecting the populace from the cradle to the grave"?).

Anyone who isn't helping in the way you need them, isn't helping at all. So there's that.

So to recap:

You want me to put my life at risk to appease your own small world version of a broken system.

Rather than focus on the solution, that's more effective, more economical and more conducive for everyone's health - you want conformity to power at greater cost and that doesn't deliver what is required.

In essence your'e sayng comply with the system that wants to kill you.

Have you seen The Matrix? You're telling me to take the Blue Pill.

Paul

Expand full comment
Djlondon80's avatar

Hi Paul, still not a bot, anyway

June 23 , Anna O'Neill

"Mr Atherton says he suffers from chronic fatigue syndrome and requires a carer and a wheelchair-accessible home for periods when he can't walk. Until that can be found, a hotel room suits his needs, he says."

Are the BBC and Anna fake news ? Maybe they are bots also ?

Expand full comment
Paul Atherton (FRSA)'s avatar

Hi DJ Bot,

Loving the way you prove that you're not a bot but doing precisely what a bot would do.

Cherry picked a point it thought would prove its point.

Searched the internet to find something that would support it.

Misunderstood what was written, posted it publicly for all to see and completely proved the opposite of what it intended.

Where in that quote did it say I had an accessible Hotel room? It didn't. Because I didn't. It's talking about a permanent home having those things i.e. wheelchair accessibility and a carer. Then saying without access to that, a Hotel room suits my needs better - because that was nothing to do with getting out, but was about being supported in the space and getting access to food.

The question you should of course be asking, is what did Westminster Council do to screw up that Hotel room (they redacted all information when a subsject access request was made) and remove it from me in the first place?

Expand full comment
Djlondon80's avatar

Hi Paul

Still not a bot anyway...

Great so a hotel room meets your needs? Take the one on offer then? That's kind of the point.

Also nothing cherry picked at all your name and wheelchair into Google first thing that came up.

If only you could put this effort into improving your situation and cooperating with those trying to help you ?

Expand full comment